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As a US new england-er, this is game changer for walking through woods.

For those un-informed, on a walk through any woods, you should always wear high socks, and do a full body check for ticks after.

Deer ticks can be as small as a few grains of sand, and near undetectable if they latch on unless you have sharp eyes.

Obviously they can transmit lymes.

I had a close encounter a few years ago, but very luckily giant rings appeared around the bite site, making it a very easy diagnosis.

That only happens in 30% of cases though. The rest likely have no idea, and over time the disease will work it's way into your nervous system, causing permanent damage if not treated quickly enough.



Many report chronic symptoms, who have been laughed at for decades.

Chronic persistence (at least in some cases) has now been proven.

Took someone with chronic lyme to donate the brain for research: https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...


Kris Kirstofferson was told by doctors that his memory loss was either Alzheimer's or Dementia. Another doctor finally decided to test him for lyme. Turns out he he probably got bitten by a tick shooting a movie 10 years prior to the positive test. https://www.rollingstone.com/feature/kris-kristofferson-an-o...


It wasn't Lyme. Kris Kirstofferson is a victim of quackery:

https://respectfulinsolence.com/2016/07/08/kris-kristofferso...


Hm. That blog post claims "chronic lyme disease does not exist"

https://news.tulane.edu/pr/study-finds-evidence-persistent-l...

I'm reading up on all this just now due to the HN front page articles, but these 2 seem to be in contradiction.


Take a look: https://www.frontiersin.org/files/Articles/628045/fneur-12-6...

These are spirochetes in the brain/spine of a dead patient who had proven lyme diagnosis in the past, and donated the brain for research.

Full study: https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...

The onus now on the "cOnSpIraCy" camp to provide scientific evidence to the contrary.


Huh, I wonder if my executive dysfunction in part could be Lyme disease. I was bitten 10+ years ago - had to pull it off, though it hadn't been there long as it hadn't latched on deeply yet - it did cause a small ring; I did get and take short course of antibiotics immediately after as far as I remember.

I've heard common bloodwork done is very poor at detecting it but is there a better or sure way of detecting it?


The article states that Lyme disease is only transmitted if the tic latches on for over 36 hours. The bacteria is latent in the tic's gut until blood is ingested, at which point it takes 36 hours for the bacteria to multiply and migrate to the tic's salivary glands.


Ah thanks - well, perhaps the mark was just my body reacting to its beginning attempt to attach.


executive dysfunction could be due to so many things.

How did it begin and how did it progress?


I've pulled four of the little bastards off me, this summer (so far).

They have gotten much worse, in the last few years (Long Island, NY).

I also know a few (several) folks that have had very bad, life-changing debilitation, as a result of Lyme. I'm aware of one (that I never met), who died from complications of Lyme. I also have a family member, that got it pretty badly, recovered completely, and now seems to be immune.

I'm having myself checked at the doctor, next week.


How are you getting checked? I understood (perhaps wrongly) that the blood tests are only accurate well beyond the window with which the medications are effective, creating a chicken and egg issue.


After a couple of days in the mountains, I found four ticks, and one bite started to turn red after two weeks.

I went to the doctor, she said the tests at this phase are unreliable, my bite could be Lyme, but could be something else too (the bulls eye rings didn't form yet). She said the pragmatic approach is too treat it as if it was Lyme and take antibiotics. It's better to take some antibiotics than wait for the symptoms (which are not always easy to assign to lyme).


There's no definitive accredited lab check as far as I know. At least here in Germany the official serologic tests for late stage Lyme can come back negative for years until the disease really progresses badly - even cerebrospinal fluid results may be normal despite neurological symptoms. My specialist uses elispot lab tests for Borrelia b. OspA, antigen and LFA-1 markers.

Other practitioners use westernblot lab results and differential diagnosis.


have you seen recent immunostaining result? albeit in research, amazingly you can actually see the bacteria.

They claim it can be cultured too.

https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...


Thanks for that link, super interesting.

Check out also Dualdur, received 3MEur from EU in 2018.

https://lymediagnostics.com/why-dd/


Not exactly sure. I made an appointment. First time I've done that. It may just be a "put it on the record" visit, with follow-ups in some months.

My relative didn't find out, until he had a cantaloupe for a kneecap. They tested the fluid, and found lots of Lyme.

He's always getting bit. Deer pass through his backyard, on a regular.

He said the treatment was anticlimactic. A course of oral antibiotics.


I've heard that Fry Labs is one of the only labs to do blood testing, but I haven't tried them myself:

https://frylabs.com/resources/lyme-disease-and-detection/


Fry Labs is listed on Quackwatch's list of "Laboratories Doing Nonstandard Laboratory Tests": https://quackwatch.org/related/tests/nonstandard/

The CDC warns against nonstandard testing: https://www.cdc.gov/lyme/diagnosistesting/labtest/otherlab/i...

You'd be surprised how little regulation that some lab testing gets: https://sciencebasedmedicine.org/new-fda-regulatory-role-thr...

There are a lot more predatory labs than Theranos out there...


why is there a window? people report recovery after several years with an appropriate treatment.


Recovery with Lyme isn’t always forever. It apparently goes into remission and comes back later. Not sure if anyone knows why or how it does that. AFAIK it is only cured if treated very quickly, before the blood tests are accurate.


The bacteria migrates throughout the body over time, including into the brain and spine, so it's easier to eliminate when treated promptly.


The bacteria can cause long-lasting damage, basically, and the symptoms of Lyme disease can just be that damage.


Yes, that can be on me situation.

The frontiers study shows bacteria persists inside the brain.


I haven't seen any recently but they were really bad earlier in the summer in Massachusetts to the point that there were a couple walks that I was doing regularly that I decided to forgo for a bit. And anecdotally I've heard a similar story from others. (Fortunately, everything I've seen have been the larger dog ticks.)


Dog ticks?


I would get this vaccine yesterday if it were available.

Shit, if I were planning on spending a lot of time in the woods (like, more than I already do), I would go to a vet and see if they would give me the one that's for dogs. Untreated Lyme messes people up.

A whole bunch of people I knew who thru-hiked the Appalachian Trail in 2010 got Lyme. I did not get it, but I don't think I was appreciably more cautious than the people I directly knew who did. Part of what makes Lyme scary is the randomness of who gets it and how easy it is to not know you've contracted it.

Fortunately, hikers are at least generally aware that it's a possibility and know to seek treatment for it specifically. Awareness in the general population is probably still much lower.

P.S. Hello from WRJ, VT, fellow New Englander!


I'm not sure if this is up to date and anything else was done in terms of research but https://scopeblog.stanford.edu/2020/03/30/lyme-disease-bacte...


That article was written by long time conspiracy theorist Kris Newby.

Newby is the producer of a propaganda documentary for "chronic Lyme" called Under Our Skin, and also spreads conspiracy theories about bioweapons:

https://sciencebasedmedicine.org/a-review-of-under-our-skin-...

https://theconversation.com/no-lyme-disease-is-not-an-escape...

The article itself is about in vitro experiments funded by other chronic lyme conspiracy theorists. It has nothing to do with human disease.


It has to do with spirochetes visible under microscope in human brain tissue.

Do you accept that rather obvious finding, or "cOnSpIrAcY" is your main counter-argument?


A vet isn't going to risk their license or take on the liability of treating a human with vaccines for dogs.


> That only happens in 30% of cases though.

According to the CDC, its 70-80%[0].

[0] https://www.cdc.gov/lyme/signs_symptoms/index.html


I think the “on the ground” answer varies depending on you, where you are and what insects are around. 70% of deer tick bites may carry Lyme, but the percentage of insect bites with red rings that are Lyme is probably different. If you’re walking through northeast pine forest or low density suburban woods, assume Lyme!

Red rings from bites are not uncommon in general. I know I get a reaction from horse flies that looks to professionals like a potential deer tick bite with Lyme.


Those of us who just went through the "Brood X" cicada emergence are now going through a glut of something called "oak mites", which apparently feed on the cicada eggs, but also just get everywhere. They are kind of like chiggers, burrowing under the skin, and are too small to see with the naked eye. The "bites" are particularly itchy and can also cause red splotching that may appear ring-like sometimes. I had a minor freak-out the first time I saw a splotch on my 3-yr-old's back, but it didn't spread and the blotchiness actually went away rather quickly. Luckily, these welts don't seem to last as long as mosquito bites.

Also, a tick-bite splotch doesn't always have to be ring-shaped.


Huh, didn't know. Just quoting my dermatologist with that.


Not the first time CDC would be wrong.

EDIT: why downvote facts?

Recent example on a hot topic: "CDC reverses itself and says guidelines it posted on coronavirus airborne transmission were wrong"

https://www.washingtonpost.com/nation/2020/09/21/cdc-covid-a...


Being wrong is the essence of science.

By contrast, lyme disease is (1) more than 40 years old, (2) not contagious, and (3) has no political headwinds. There is little reason to distrust CDC on this.


Several states felt it was necessary to pass laws regarding Lyme and provide immunity to physicians willing to treat long haul covid...errr long haul lyme patients.

Seems rather naive to presume they had to pass new laws because Lyme has no political headwinds. It has plenty of controversy around it, for better or worse.


I was able to substantiate your comment about the laws being changed in two California bills (2013 AB1278 and 2005 AB592) amending BPC 2234.1 that appears to relax restrictions about treatment of "persistent" Lyme disease.

I do not think it is relevant to the point in this thread that is discussing whether Lyme disease does or does not result in a bullseye rash (Erythema Migrans or EM), and the CDC claiming that in 70-80% of cases the rash is present, which you baselessly disputed and edited your comment to accuse those of downvoting "facts".

As an example of what "evidence" might be, a 2009 paper [1] in Current Problems in Dermatology refers:

> EM is by far the most frequent manifestation of Lyme borreliosis. In the USA, more than 70% of patients registered with Lyme borreliosis had EM [28]. Among 1,471 patients shown to have Lyme borreliosis in an epidemiologic study in southern Sweden, EM was seen in 77% of all cases, and was accompanied by other signs of the disease such as nervous system involvement, arthritis, lymphocytoma and/or carditis in only 6.5% [29]

You can dispute those referred studies if you wish, but I think it would be hard to argue that CDC's statement that Lyme disease is characterized by EM in 70-80% of cases is untrue.

[1] Strle, F., & Stanek, G. (2009). Clinical Manifestations and Diagnosis of Lyme Borreliosis. Lyme Borreliosis, 51–110. doi:10.1159/000213070


You should provide evidence, and when you go back and edit your response to do so, that evidence should be relevant to the discussion at hand.

There's a huge difference between data on a disease that's been studied for over 40 years, vs one that's only been around for a few months.

If you think the CDC got it's facts wrong on Lyme disease, it's as simple as saying "This source disagrees", and provide the source. Jumping to the conclusion that your unnamed source is more accurate than any other is another problem itself.


The downvotes are because you contradict a sourced claim with no sources then just say that the people citing research are wrong without backing


16% without erythema migrans ("lyme rash") https://pubmed.ncbi.nlm.nih.gov/12543291/

80% develop EM https://www.aafp.org/afp/2012/0601/p1086.html

You can easily find a lot of sources in this ballpark.


My experience with ticks: Closer to the home is where you're going to find the small ones. I've had two on me. First one was easy to spot it looked like a freckle on my knee. The second one I felt the bite (thought it was an itch) and it was on my inner thigh. Not sure if I would have noticed the second one if it wasn't for its haphazard bite. Both latched on when I was in / near the garden.


For those of us with dark skin, the bullseye ring may be there but be imperceptible, making it even harder to diagnose.


Here are a few pictures of a deer tick that bit me in 2020. I got pretty sick from it. Penny and ruler for scale:

https://imgur.com/a/xgF5Zw2

Its body quit tiny is just over 1mm in width.

I got it either sitting in a field of grass that was a few inches tall, or walking through some brush for 5 minutes a Minneapolis park. I wasn't out doing anything exciting like hunting for morels in old growth forests.


I go hiking a lot in the Hudson area of New York and have my concerns about ticks too. As you said, tall sock are recommended. I also use permethrin on all my lower items of clothing including shoes. I sometimes also use Off on my exposed skin areas and then check for ticks after my hikes.

My wife was once bitten by something through her pants. That left a small ring. I do doubt it was a tick though.

My sister on the other hand was bitten by something a few years ago, she thinks it was a spider. There were multiple red rings extending far and she started having other reactions and needed hospitalization. They pumped her so full of anti-biotics(was on a drip for days), it left her digestive system screwy for months but at least she does not have Lyme disease now.


Lint rollers after a hike/walk isn't a bad idea either.


I'm convinced you can become and/or grow immune to Lyme, though. It's purely anecdotal.

I grew up where we built our house (deep, deep in the woods). I spent my childhood on the farm there. Ticks were a constant menace, I honestly don't know how many hundreds I pulled off myself as a child.

When I was able, my spouse and I purchased it and built a house. 6 months after moving in, my spouse developed Lymes disease. I have no explanation, other than I am immune to the ticks in the area (or I have had it my entire life with zero symptoms maybe?).


When you were young, those ticks may not have had lyme. More importantly, you removed them. They have to be attached for 24 hours before the bacteria comes back out of the tick's gut.


No, removing them early just reduces the chance of getting Lyme. There's no such thing as a 24 hour barrier.


The article states there is a 36 hour barrier. Do you have a source?


E.g. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4278789/ "in animal models, transmission can occur in <16 hours, and the minimum attachment time for transmission of infection has never been established"

or

https://www.lymedisease.org/tick-lyme-transmission-time/ "Study finds nymphal ticks can transmit Lyme within 12 hours"


A few houses ago we lived on 2.5 heavily wooded acres in a tick endemic area. Probably got 30 ticks on me from working in the woods.

Never got Lyme disease though by following what you said - check for ticks at the end of each day. It really is true… if they are latched for less than 36 hours you are good.

My son on the other hand had Lyme disease when he was about 6 with a found tick followed by obvious bulls eye rash in the middle of his back. The one time we didn’t check him at end of the day… 30 days of amoxicillin and he’s been fine the past seven years.


Tall socks and trousers sure, but of course they'll get wherever. The only time I had one of them little suckers I only found out the next day... under my wristwatch!


Actually Lyme is a huge problem in southern Germany as well. Actually it seems that a lot of inflammatory joint problems stem from it that are often wrongly diagnosed.


And brain problems, discovered years later.


and ticks in Germany are massive compared to the ones we get in North America.


Which lyme carrying species are you comparing? For Ixodes scapularis compared to Ixodes ricinus I see adult female sizes of 2.5 mm vs 3.6 mm. Not a huge difference. Are you sure you're not comparing larvae or nymphs to adults or even gorged adults?


I've taken a tick out of my dog in Germany and I've taken a tick out of my dog in Canada. The German tick was nearly an inch long with. The Canadian ticks I take out of my dogs are specks with legs, or at the most 2-3cm long.


You mean 2-3mm I assume. That's a common size here in Germany, too.

Ticks in Germany are no longer than about 1 cm when saturated, at most. An inch sounds incredible to me - probably a different species?


Small edit: The article claims 3/4 have the circular rash, not 30%.


This is enormously good news for mountain bikers too.




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